Remaining Hopeful

Well we had "the Hopeful" Drs. appointment. And while Cameron does NOT have cyclic febrile seizures... He does have febrile seizures due to infection... Cameron's infection that is causing his HIGH Fever is almost always strep throat. So the conclusion is we wait to see if he keeps getting Strep. Dr said now that Cameron is 3 he is less likely to get as many step infections as he did before(I'm a little skeptical). This winter will be the test period and if Cameron continues to follow the same path of strep infections resulting in HIGH FEVERS then we can talk about taking out his tonsils.

So I haven't lost hope that there may be some relief for Cameron, however I'm a little disappointed. I say this only because of the history. This past August I tried to be hopeful that Cameron would not get sick, but I was wrong. 3 consecutive Augusts Cameron has had seizures. Now December is quickly approaching and this month has a similar history to August. Will this make 3 consecutive Decembers with similar results. Is this going to be another Holiday of isolation and exhaustion?

Last Christmas Cameron Playing with his Manger while sporting his "cool" Hospital Gown.

I guess I don't know, but I am going to remain hopeful instead of worry.... Cameron gets sick then actions will be taken... Cameron doesn't get sick then maybe we have turned a corner and we will get to enjoy Christmas to the fullest... I guess it can only go up from here.

An awakening in Play and Hope!!

So Mike and I had an encounter this week where Cameron was clearly imitating an very common occurrence in our house that happen's about once every 2 1/2 to 3months.

Cameron found the thermometer. And was pretending to take Mike's temperature. When all of a sudden he says...

"Oh Crack... 15" Now you are probably wondering what this means...

Let me explain and then translate. I'm sure most of you know that Cameron suffers from Febrile seizures so Every time he gets/spikes a fever we MUST MOVE QUICKLY!!! So once his temp is taken ice and Motrin must be retrieved where ever we are. In the beginning there were many times when I wasn't prepared or hadn't quite learned what I needed to do (Car rides being the most frequent) thus resulting in seizures and trips in ambulances. (never fun and probably a little tramatic for us) So once I take his temp and I get something over 100 I will react. And after this little dramatic play from my son I'm confident what my reaction is. "OH CRAP... 101(or what ever the temp is)"

Well this takes me to my very exciting news as well as what I believe is a blessing from God. I may not have to react that way for much longer. I am pleased to say that by chance I received an article describing a condition where children have cyclic fevers resulting in Febrile seizures. And that there is a cure Take out the child's tonsils and adenoids. The article talks about how in some cases parents can tell you the exact day the fever will hit others a ball park. So when I went back through Cameron's records I can do that. I can tell you the exact month that Cameron will get these fevers. So maybe he could be a candidate for this procedure. Now wait here is the best part of the story the Doctor that discovered this cyclic fever and cure is at Children's Hospital BOSTON. (I could cry just saying it) Now we are scheduled to see this Doctor on the 20th of Nov. So I ask for you prayers. I'm trying not to get my hopes up because I don't know if Cameron will qualify for this treatment... But I gotta have faith that these things happen for a reason. I'm not sure where I stand on miracles and I def. don't understand how some people are cured and others aren't, but I gotta have faith that God knows best and Know I really feel like God is in this situation.

The Why Dialog

Well I realized today that we have reached Why stage of development for Cameron... Mind you every time he says it Sadie repeats it so it's like a double dose.

Do you ever start comprehending what you are saying like 5 words to late???

Here's how the Why dialog went... Clearly was not thinking when I started speaking.

Setting the stage: Sadie is infront of the love seat lying on the hard wood floor having her diaper changed. Cameron is jumping all over the love seat.

Me: Cameron don't jump on or off the Love seat cause you could jump on Sadie

Cam: Why?

Me: Cause you could hurt her.

Cam: Why?

Me: Cause if you jumped on her she would get a boo boo from you and the hard floor.

Cam: Why??

And this is where it happens I start teasing/speaking and then comprehend a little late what I really am saying...

Me with a smile : I know why don't you lay on the floor and I'll jump off and we'll see if it hurts you??

Cam: Na.. I don't want to do that??

Me just like Cam: Why??

Cam (Laughing): Cause I don't want to

Me: Why???

Cam (Still laughing): Cause I don't want to....

Me: Why??

I still can't believe what I said... I from now on promise to handle the why questions better... Answer once and then ignore!!

What kind of mother am I???

"Lady Like"

As a young child I could be a girly girl. I loved doing my hair or having my hair done, painting my nails. I loved pretty clothes, and I was notorious for doing cart wheels in the middle of church league basketball games. Despite my girliness I often heard the phrase "Megan that's not very lady like" Well Today's Blog is about my little girl Sadie Ruth

Just look at my beautiful little girl Could you even imagine that she is not 100% girl.
(No comment from the peanut gallery those who know her on a daily basis)

Well I see those same characteristics in my daughter... Loves to have her hair done, says "paint piggies"and loves her pretty clothes. (I'm sure she wont do a cartwheel in the middle of a basketball game cause she has an older brother to keep up with and be an example) However I often want to say to my 2o month old daughter "Sadie that's not very lady like."

Today was no exception. In our home we call passing gas... "toots" Sadie calls them "Tuts" Well today while Sadie was sitting on my lap she started to smile and get very still. As I hear her toot. SHE BEGINS laughing histerically "I tuts" she says. Then she proceeds to pass gas on command at least 3 more times. Each time laughing hysterically. And all I could think to say was "Sadie don't do that your gonna hurt your tummy." Which is totally false it probably will help her tummy to let out all that air... but what I really wanted to say was "Sadie that is not very Lady Like"

There are so many more other things that contribute to my daughters "unlady likeness". She pretends to burp and then says "ecuse me" while laughing and thinking she's cute. The icing on the cake is that she currently is sporting a very big and very purple shiner on her right eye. For Halloween I wanted to dress her up like a boxer cause she looks like one. Lastly let me give you the full picture of how undelicate my baby girl is... I think these pics speak volumes. hahahaha




























I guess I will be frequently saying what was said to me as a child... "That is not very Lady Like"